A declaration of our commitment

FullyKnow™ Personal Health Data Bill of Rights

Your health story is one of the most personal things you possess. FullyKnow believes individuals should be informed partners, empowered decision-makers, and trusted stewards of their own health information.

1. The right to own your health story

Your health information belongs to you. FullyKnow acts as a trusted steward, not the owner, of the health information you provide.

2. The right to visibility

You should be able to see your health information as a connected story rather than a series of isolated records.

3. The right to understanding

Your health information should be presented in language and formats that help you understand it and prepare for informed conversations.

4. The right to control

Where supported, you should be able to grant, review, and revoke access to your information and manage connected data sources.

5. The right to privacy

You deserve clear explanations of what is collected, why it is used, and what choices are available to you.

6. The right to security

Your health information deserves administrative, technical, and physical safeguards throughout its lifecycle.

7. The right to responsible AI

You should know when AI is involved. AI should assist understanding, not replace your judgment or that of qualified healthcare professionals.

8. The right to accuracy

You should be able to review information, identify errors, and request corrections where appropriate.

9. The right to portability

Your information should not be trapped inside a platform. Where feasible and lawful, it should be exportable in commonly used formats.

10. The right to transparency

You deserve to know how information is collected, protected, shared, retained, deleted, and used by AI.

11. The right to be heard

Your questions, concerns, and feedback should be treated as essential inputs to responsible innovation.

12. The right to continuous protection

Protection should extend from collection through storage, use, sharing, retention, and secure deletion.

Your health story belongs to you. Helping you FullyKnow™ it is our purpose.